Tuesday, January 15, 2013 day 114
We have had a lot going on lately. With a handful of visitors here and there and having a few things to sort out with doctors and nurses, I have been busy.
Last week, Emma lost a ton of fluid and her swelling has come down a lot. The idea is once you have been on higher concentrations of dialysate for an extended period of time your peritoneum usually begins to scar up and stop working. Emma has been on the highest concentration for weeks in addition to being on shorter dwell times. We had to move to this combination when she stopped pulling any extra fluid off at all(a sign her peritoneum was failing). For the last ten days, Emma has pulled off so much fluid!! The first several days she was still on the higher concentrations. She came down with a bacterial infection last Tuesday. Emma spiked a fever and acted abnormally maybe for 4 hours and has basically been fine since then. The infection left concerns that Emma could be getting intravascularly dry- her dextrose concentration was lowered.
We were so nervous for them to lower it- what if she didn’t pull any fluid off? We had already gained such ground. Well, after 12 hours they had to step it up a notch but Emma has continued to pull fluid off(even more that usual) inspite of being sick and being on a lower dialysate concentration!!!! She looks great!!! Praise The Lord!! Now in the last 24 hours, she hasn’t moved quite as much fluid so they are tweaking it once again. I am still Praising God!!!
Emma was officially 4 months old on Sunday.
Shortly after this photo was taken, Emma graduated to a crib! Is it even possible that we have been here long enough for Emma to have outgrown the baby bed??!!!! Oh my!!!!
She has so much more room now!!!
Maddie has been having a ball! She has been playing dress up, cooking, painting, dancing and singing. She continues to be slightly obsessed with Cinderella. We have also been watching Ratatouille quite a bit. The common theme of the mice in the two movies has given Madison a new awareness for mice. When we go out to eat, she will ‘accidentally’ drop some food on the floor… look at me and say, “the mice will get that!” Oh my!!! I feel so sorry for the people sitting around us. I am sure they are not filled with the warm fuzzies when they hear mice being mentioned as my two year old points to the floor!!
I have been so encouraged by Emma’s progress!! God is faithful! He has not left us!! Lately, I have had such peace. God’s provision for our little family has been amazing. I am excited to see what He has in store for us next
Great is Thy faithfulness!
Great is Thy faithfulness!
Morning by morning, new mercies I see; All I have needed Thy hand hath provided!
Great is Thy faithfulness! Lord, unto me!!
Keep praying for our little family. We are beyond ready to come home!