Thursday, December 20, day 88

Great is Thy Faithfulness!!

This morning I am sitting alone at a table in the hospital cafeteria eating breakfast. It took me a few minutes to realize that I was in fact the weirdo siting by themselves and singing, out loud. And you know what- I don’t care. I am OK with being that ‘crazy’ person!

This morning I have been singing Great is Thy Faithfulness. We don’t really have any good or encouraging news to be singing about. But God is faithful to provide what we need when we need it. In fact, this week has been a rollercoaster. I know- shocker! It seems that every week and even every day are a ride to some extent!

Emma didn’t pull off quite enough fluid yesterday. It appears her peritoneum is slowly giving out. Her IV access is leaking off and on and there really is no other place to put anything long term. On Tuesday she had an MRV. It is an MRI of the vascular system. Just as we had suspected- almost all of the larger veins have clotted off and many smaller ones have taken their place.

Today her eyes are very swollen but she finds comfort in just holding your hand. She is still on the ventilator. They are slowly weaning her support back. She rests well for most of the day and fights having her days and nights mixed up. I know that God is still using Emma. So we are waiting and trusting in God’s faithfulness.

Jason will hopefully join us in the next day or so. We will be glad to see him!

Much love!!